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Lupus 11-23-10 a day in life with lupus
Lupus 11-23-10 a day in life with lupus
The pain today is immense. It is both fibromyalgia and lupus pain. Also, Carrie came over and gave me a pedicure. Who knew getting a pedicure could be such hard work….
Lupus 11-23-10 a day in life with lupus
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-20-10 a day in life with lupus vlog
Lupus 11-20-10 a day in life with lupus vlog
I really had to push myself today to get some things done. I couldn’t put them off any longer. My breathing is difficult and my stomach won’t settle down….
Lupus 11-20-10 a day in life with lupus vlog
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-18-10 a day in life with lupus vlog
Lupus 11-18-10 a day in life with lupus vlog
I am shakey. Is it from the lupus, cytoxan, prednisone? Who knows but I would like it to stop….
Lupus 11-18-10 a day in life with lupus vlog
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-19-10 a day in life with lupus vlog
Lupus 11-19-10 a day in life with lupus vlog
Physical therapy helped with my neck and back pain. Now I really feel my hip and knee pain! What a vicious circle….
Lupus 11-19-10 a day in life with lupus vlog
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-15-10 a day in life with lupus
Lupus 11-15-10 a day in life with lupus
Vanessa took me to two doctors visits….
Lupus 11-15-10 a day in life with lupus
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-17-10 a day in life with lupus vlog
Lupus 11-17-10 a day in life with lupus vlog
Endured another Cytoxan infusion. Have a bad headache from the Zofran. Looking forward to feeling better….
Lupus 11-17-10 a day in life with lupus vlog
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-16-10 a day in life with lupus vlog
Lupus 11-16-10 a day in life with lupus vlog
Still hurting from the fall. My parents came to visit. My video clip can be seen this Sunday morning at 9am est on
Lupus 11-16-10 a day in life with lupus vlog
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-14-10 a day i’m life with lupus
Lupus 11-14-10 a day i\’m life with lupus
I’ve fallen three times in the last week. Steriod myopathy has given me severe muscle loss. I have got to increase my strength before I fall and break a bone….
Lupus 11-14-10 a day i\’m life with lupus
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-12-10 a day in life with lupus vlog
Lupus 11-12-10 a day in life with lupus vlog
A quiet day at home. Just painting my nails left me in excruciating pain. I made it to the church mission banquet. Hope I’m ok tomorrow….
Lupus 11-12-10 a day in life with lupus vlog
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-11-10 a day in life with lupus vlog
Lupus 11-11-10 a day in life with lupus vlog
Dwayne had the day off of work so we ran errands. I over did myself….
Lupus 11-11-10 a day in life with lupus vlog
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-11-10
Lupus 11-11-10
Dwayne had the day off of work so we ran errands. I over did myself….
Lupus 11-11-10
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog
Lupus 11-10-10 a day in life with lupus vlog
Lupus 11-10-10 a day in life with lupus vlog
Good day with occupational therapy. I also put on makeup so I would feel better about myself. Everyone that suffers from chronic pain needs to invest in a Roomba….
Lupus 11-10-10 a day in life with lupus vlog
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Tags: Adrenal, Ana, Antiphospholipid, APS, arthritis, Autoimmune, Brain, Butterfly, Care, Chemotherapy, Chronic, Cognitive, Connective, Cushingoid, Cytoxan, Disability, disease, Dysfunction, face, Fatigue, Fibromyalgia, Flare, Fog, Illness, Insufficiency, Isolation, Lupus, Malar, Marks, Medications, Mixed, Moon, Myopathy, Neuritis, Optic, Oral, Pain, Photosensitivity, Plasmapheresis, Pleurisy, Rash, Raynauds, Rituxan, Sepsis, Sjogrens, skin, Sle, steroid, Stretch, Syndrome, Systemic, Tissue, Titer, Treappling1, Ulcers, Vlog





