Lupus 11-23-10 a day in life with lupus

Lupus 11-23-10 a day in life with lupus

The pain today is immense. It is both fibromyalgia and lupus pain. Also, Carrie came over and gave me a pedicure. Who knew getting a pedicure could be such hard work….



Lupus 11-23-10 a day in life with lupus

Lupus 11-20-10 a day in life with lupus vlog

Lupus 11-20-10 a day in life with lupus vlog

I really had to push myself today to get some things done. I couldn’t put them off any longer. My breathing is difficult and my stomach won’t settle down….



Lupus 11-20-10 a day in life with lupus vlog

Lupus 11-18-10 a day in life with lupus vlog

Lupus 11-18-10 a day in life with lupus vlog

I am shakey. Is it from the lupus, cytoxan, prednisone? Who knows but I would like it to stop….



Lupus 11-18-10 a day in life with lupus vlog

Lupus 11-19-10 a day in life with lupus vlog

Lupus 11-19-10 a day in life with lupus vlog

Physical therapy helped with my neck and back pain. Now I really feel my hip and knee pain! What a vicious circle….



Lupus 11-19-10 a day in life with lupus vlog

Personal stories from people affected by lupus shared at the fda hearing on benlysta

Personal stories from people affected by lupus shared at the fda hearing on benlysta

On November 16, 2010, an FDA Advisory Panel held a hearing to review data on an investigational medicine for the treatment of systemic lupus, Benlysta®. During the proceedings, more than 30 individuals from the general public and advocacy community presented testimony. In this video, twelve individuals who testified before the FDA panel share their stories. They represented people with lupus and family members of someone living with lupus. Their stories were compelling and helped to convince the panel members of the urgent need for new, safe, more tolerable, and effective treatments for lupus…



Personal stories from people affected by lupus shared at the fda hearing on benlysta

Lupus 11-15-10 a day in life with lupus

Lupus 11-15-10 a day in life with lupus

Vanessa took me to two doctors visits….



Lupus 11-15-10 a day in life with lupus

Lupus 11-17-10 a day in life with lupus vlog

Lupus 11-17-10 a day in life with lupus vlog

Endured another Cytoxan infusion. Have a bad headache from the Zofran. Looking forward to feeling better….



Lupus 11-17-10 a day in life with lupus vlog

Fda panel recommends approval of benlysta® for treating systemic lupus

Fda panel recommends approval of benlysta® for treating systemic lupus

On November 16, the US Food and Drug Administration (FDA) Arthritis Advisory Committee voted overwhelmingly (13 to 2) to recommend BENLYSTA® for approval as a treatment for the autoimmune disease lupus. If ultimately approved by FDA , BENLYSTA would become the first new treatment for lupus in 52 years. While the vote was a positive step, the FDA still must make a final decision to approve BENLYSTA in the coming weeks. Following the panel’s vote, Dr. Gary S. Gilkeson, Chair of the LFA Medical-Scientific Advisory Council, and Sandra C. Raymond, LFA President and CEO, presented comments on the s…



Fda panel recommends approval of benlysta® for treating systemic lupus

Lupus 11-16-10 a day in life with lupus vlog

Lupus 11-16-10 a day in life with lupus vlog

Still hurting from the fall. My parents came to visit. My video clip can be seen this Sunday morning at 9am est on



Lupus 11-16-10 a day in life with lupus vlog

Fda advisory panel begins historic review of benlysta™ as potential new treatment for lupus

Fda advisory panel begins historic review of benlysta™ as potential new treatment for lupus

On November 16, 2010, an FDA Advisory Panel will review scientific data on two late-stage clinical studies of an investigational medicine for the treatment of lupus, known as BENLYSTA™. This is a historic day for lupus as BENLYSTA could be the first new treatment approved for lupus by the FDA in 52 years, when Dwight D. Eisenhower was President of the United States. In addition, BENLYSTA would be the first treatment ever developed specifically for lupus to be approved by the FDA for lupus. Representatives of the Lupus Foundation of America (LFA) will testify before the Advisory Panel during…



Fda advisory panel begins historic review of benlysta™ as potential new treatment for lupus

Lupus 11-14-10 a day i’m life with lupus

Lupus 11-14-10 a day i\’m life with lupus

I’ve fallen three times in the last week. Steriod myopathy has given me severe muscle loss. I have got to increase my strength before I fall and break a bone….



Lupus 11-14-10 a day i\’m life with lupus

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